The Global nLPHL One Working Group (GLOW) is a multidisciplinary group that facilitates national and international research partnerships to optimize the diagnosis, care, and outcomes for (and with) patients diagnosed with NLPHL worldwide.
We serve as a coordinated hub for NLPHL research across the age continuum.
2020
>200 researchers
>35 countries
>50 patient advocates
8 publications
6 research committees
>25 posters & presentations
1 clinical trial in progress
We are learning from past research and experience, so we: