NLPHL Research

GLOW’s international, multidisciplinary network conducts rigorous research across the age continuum in order to improve the diagnostic accuracy of NLPHL, establish a global standard of care, and improve patient outcomes.

GLOW Research Policies & Forms

Instructions for GLOW Researchers

Please review the GLOW publication policy before completing a GLOW project application form.  

 

Instructions for non-GLOW Researchers

Please email GLOW@urmc.rochester.edu to discuss our research processes and how to become a GLOW researcher.

NLPHL Research Databases

NLPHL Retrospective Database

GLOW maintains the world’s largest database of clinical data from over 2,000 patients of all ages and stages who have been diagnosed with NLPHL.   As of 2022, GLOW is partnering with the NODAL and the Pediatric Cancer Data Commons to harmonize and house incoming retrospective clinical trials data.  

 

To learn more about how your site can contribute NLPHL case data to the GLOW retrospective database via NODAL, please contact Suzi Birz (sbirz@bsd.uchicago.edu) or email GLOW@urmc.rochester.edu.

 

NLPHL Tissue Bank

The GLOW NLPHL biobank resides at Stanford University. Researchers who are interested in sharing or utilizing samples for collaborative research with GLOW may contact  GLOW@urmc.rochester.edu to discuss.

NLPHL Studies

GLOW Studies

Patient-Reported Outcomes and Quality of Life in Adult and Pediatric Patients with Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHLPRO)

NLPHLPRO is the first study of patient-reported outcomes in patients diagnosed with NLPHL.  This multi-site GLOW study was designed by the GLOW Patient-Reported Outcomes Committee under the leadership of Dr. Ajay Major.

 

Principal Investigators

Valerie Crabtree, PhD  |   St. Jude Children’s Research Hospital

Anna Jones, PhD  |   St. Jude Children’s Research Hospital

Ajay Major, MD, MBA  |   University of Colorado School of Medicine

Jamie Flerlage, MD, MS  |   University of Rochester

Matthew Rees, MD  |   St. Jude Children’s Research Hospital

Collaborating Sites

Dana-Farber Cancer Institute & Harvard University

Emory University

Hackensack University Medical Center

Memorial Sloan Kettering Cancer Center

Stanford University

St. Jude Children’s Research Hospital

The University of Texas MD Anderson Cancer Center

University of Colorado

University of Rochester Medical Center

Other NLPHL Studies

Additional non-GLOW NLPHL studies may be available at this time.  Below are resources that maintain databases of active and historical clinical research.

Join the Effort